
It's the Great Space Coaster, just kidding, it's my transport module or whatever you want to call it. Yesterday, I got airlifted to the University of Chicago
Colmer Children's Hospital. Sunday night, things kinda got a little crazy and I wasn't sure what I wanted to do, but I decided not to waste all strength and decided to take some lessons from Pretty Boy Floyd. After some very scary moments, I finally nailed the knockout. On Tuesday, my doctors thought I was ready to come off the
ventilator and tried to take me off. My lungs were ready, but it appeared that my
esophagus was not. It seems that I now have some swelling and it made it hard for me to get enough air into my lungs to stay off the vent. Needless to say, I had to go back on the ventilator. This was a concern, because it is possible that some of my problems may not have been totally due to my lung disease, but possibly due to some airway obstruction. I've know for a ccouple of weeks that I had a small weakness in my throat, but it wasn't thought to pose any eminent danger. This weakness may have grown and caused the swelling or the ventilator tube may be the culprit. One way to overcome airway obstruction is to place a tracheostomy, which is a small hole inserted into the neck that would allow breathing through my the hole, thus bypassing the airway obstruction. It was decided that I needed to be evaluated by some specialists at U of C to determine if this was the case, so up, up and away I went on the helicopter. My Mom is certainly glad that she chose the HMO this year or I might have to come home and sleep in the bed with Zoie. I have now spent my first night at the new hospital and I am stable and doing tolerably well. They have had to use some paralysis medicine on me because I am just not really wanting to have this tube down my throat. So basically, I'm chillin' and stay sleep most of the time. The doctors are waiting for me to improve enough to try to take me off the ventilator, so that the ENT (ear, nose, throat) docs can try to evaluate what is going on in my airway. It may happen as soon as tomorrow or early next week. We are excited, but nervous to find out what they see, but it may help answer some questions. I miss all of my Hinsdale family but they have over 190 nurses at U of C and my Mom says I am too young to settle down so I am looking forward to meeting some new ladies (wink, wink).
Hi Kyle,
ReplyDeleteRemember me... Hannah from the NICU at hinsdale. My family has had you in their daily thoughts and prayers. Please tell your mom and dad that we are always thinking of them.
Eric Rachael Ryan Jillian and Hannah
P.S. You are as cute as I remember!!!!
Kyle,
ReplyDeleteYou have us so worried over here with these uppys and downys! But i know that you are a little rascal and like to keep everyone on their toes...:)
Now just hurry up and come home bc.there is a little doggie waiting to play with you!
take care fighter-
XO
Sohni