
When I first got to the NICU, they told us that it was going to be a roller coaster ride, and there is nothing untrue about that. Last Wednesday, I finally had my hernia surgery. It was a complete success. The surgeon said it was one of the most severe cases he had seen, but was able to complete the operation in a little over an hour and without having to put me to sleep. I began recovering well and was back to my regular oxygen level by the end of the day. Things were going extremely well until Friday afternoon. Over the last 2 weeks or so, I had been having what appeared to be some discomfort and would have episodes where I would cry and get so worked up that I wasn't breathing properly. Everyone had a theory about what it was but most people thought it was Colic or more discomfort due to the hernia. Well, these episodes began to intensify on Friday and everything went downhill from there. After trying multiple treatments to help me calm down, oxygenate better and rid my body of carbon dioxide, the doctors had to put me back on the ventilator. This is probably the worst thing that has happened to me so far. When I was tiny, it was a lot easier to take the ventilator. The last time I was weighed, I was 9lbs 14oz and this big boy does not like tubes down my throat. They have to keep me restrained and sedated so I don't pull it out so I am not really having much fun right now. I think that they are going to have to restrain and sedate my Mom soon. The doctor seems to think I am having some sort of post operative stress which is leading to bronchial spasms. They have increased my steroid dosage in hopes of relieving this and hoping to get me off the ventilator in the next few days. Needless to say, this has once again prolonged my homecoming. I'll make sure that I keep you updated on things but as always, please keep us in your prayers and we try to make it through what I am sure is going to be a very interesting week.
Kyle, I know you are a little fighter and things always tend to get worse before they get better. So despite the setback I am confident you are on your way to positive health- just taking its time right now. Don't worry about your homecoming because your home will always be there when you are strong and ready- Take care and lots of hugs and prayers for ya babe.
ReplyDeleteLove,
Sohni