After what seemed to be forever, we finally got the results back from my ECG test. The cardiologist says that my heart thickening has not gotten worse over the last two weeks. We were praying for improved but will definitely take no change over worse. They are going to go up on one of my heart meds to see if that helps and repeat the test in a week. My new pediatric doctor also suggested keeping me in a paralyzed - sedated state for 2 weeks to give my heart a rest and allow my oxygen settings to be weaned on the ventilator. She suggests that if we can get the oxygen level down, it will give the lungs a better chance to grow new healthy lung tissue, which in turn will alleviate the stress on my heart. It sounds like a plan, so we are going for it. Our motto these days is "if it doesn't hurt him, let's try it." This paralysis thing only hurts Mommy because she can't see my big, beautiful eyes, but she'll be ok.

On a side note - I know, I'm a little chunky. It's the steroids, I'll grow into it...lol.