The last two weeks have been pretty interesting and I have finally made some progress. My parents had another one of those dreaded meetings, but this time, it was a little better than the last two. As things had seemed so bleak before, we now have some indication that my heart may actually be able repair itself some. The last test showed some changes that had my doctors say that they were encouraged by what they saw. I know by now, you all know how cute I am (who could resist these big cheeks), so it's no wonder that I have picked up yet another girlfriend. There is this really awesome pediatric doctor who has taken an interest in me and has been doing everything that she can to try to help me. She's used to dealing with us older babies and I think she has a thing for me.....lol. Many of her suggestions have actually helped with my progress. She challenged me to wean my oxygen down under 60% and I was able to do just that. One of her suggestions was to try putting me on my belly more and for reasons way too complicated for me to explain on here, it has helped tremendously. Yesterday was supposed to be the end of my 2 week paralysis, but everyone decided that it would be beneficial to go for another week or 2 to see if we can maximize the progress that I've made. We realize that it is going to take a while before I am fully recovered, so we continue to be patient and pray for healing.

The progress that I have made is the best Christmas present that we could have ever asked for. I have my tree up and my Christmas music playing and am looking forward to a great celebration on Friday. Happy holidays to you all and PLEASE be sure to keep me in your prayers. Thanks so much.

After what seemed to be forever, we finally got the results back from my ECG test. The cardiologist says that my heart thickening has not gotten worse over the last two weeks. We were praying for improved but will definitely take no change over worse. They are going to go up on one of my heart meds to see if that helps and repeat the test in a week. My new pediatric doctor also suggested keeping me in a paralyzed - sedated state for 2 weeks to give my heart a rest and allow my oxygen settings to be weaned on the ventilator. She suggests that if we can get the oxygen level down, it will give the lungs a better chance to grow new healthy lung tissue, which in turn will alleviate the stress on my heart. It sounds like a plan, so we are going for it. Our motto these days is "if it doesn't hurt him, let's try it." This paralysis thing only hurts Mommy because she can't see my big, beautiful eyes, but she'll be ok.

On a side note - I know, I'm a little chunky. It's the steroids, I'll grow into it...lol.

Things have been coming along pretty well since the dreaded meeting. As my parents refuse to give up on me, I have been seeing a lot of different doctors to make sure everything is being done to help me. Today, I am supposed to be having my heart looked at again to see if there has been any changes since my last ECG test. My mom sought out the GI docs to see if they can make sure this colic thing is indeed colic, so they are also going to be doing some more tests on my digestive system. I had a pretty scary day yesterday when a pretty thick mucus plug got stuck in my trach. Luckily, my nurse was quick on her feet and got the right people to help right away. Needless to say, this all happened right as Mom was walking in. Poor Mommy. So I am not sure that I will have the tests done today, but I am sure it will be this week. As soon as we know more, we will be sure to let you all know.

I am sharing a picture from September at the request of my Auntie Erica. She fell in love with it and thought you all should see it. It is a priceless display of how much I love my Mommy and she loves me (love you too Dad).