So, it's been a busy couple of weeks for me but things are going pretty well. My incision is pretty much healed and I have had the trach tube changed a few times with no problems. I am adjusting well and was even able to take a few bottles. I've continued to ride the roller coaster as it seems that my gassy fussiness is continuing to prevent too much weaning on the ventilator, so we are just trying to ride this colic thing out. We've read and heard a lot that colic usually gets much better by 3 months, so we are praying that it will be better for me soon. I am breathing pretty good, but my CO2 levels continue to skyrocket and then magically go back down on their own schedule. Because my little heart has to work really hard to oxygenate my lungs, it is causes a little thickening on the right side. We are not going to worry about it too much right now, but definitely have one eye on it. I am getting some medicine to help relax the heart muscle, so it doesn't work so hard.

It's really hard to say right now but the doctor told my Mom to hope for Christmas, not Thanksgiving.