Nov 24, 2009

It's been a long 2 weeks and so many things have happened during this time. I am over the respiratory infection, which is a good thing. After being in the hospital for 200 days, my parents had a family meeting with the medical staff to discuss my progress and long term treatment plan. Unfortunately, over my little lifetime of struggling with my breathing problems, my little heart has been working so hard to keep me oxygenated. As the doctors put it, "it's a race between my heart and lungs. Either my lungs have to get better before my heart gives out." I have developed what is called right ventricular hypertrophy (a thickening of the heart muscle). This was pretty devastating to hear, but we have not given up praying. The doctors say that my condition is moderately severe and their prognosis is not very promising. They are doing everything that they know about to help give my heart a break, but they cannot promise anything. The nurse told my Mom to cross her fingers, but my Mom told her to uncross her fingers and put her hands together and PRAY! So that's what we are doing and that's what we are asking all of you to do for us.

11 comments:

  1. My prayers are with you and your family Andrea. I will continue to ask God to watch over Kyle and keep him safe and healthy.

    Let us know what you need.

    Much love and healing thoughts.
    -Sohni

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  2. Kyle- I am thinking of you and praying for you every night. I know your mommy really wants and needs you to get well, and I know you can do it! Keep hanging on...we will keep praying to God.

    Much love- Sabrina

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  3. Quantis and Andrea,

    I have been peeking in on you your sweet little man. I am praying for for God to be with him and you.


    Wally Balzac

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  4. I am praying for you and your family - Kelly Ross

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  5. Joe and Angie are keeping you in our prayers.

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  6. You and your family are in my prayers, Kyle. You are a fighter and have accompished so much thus far...more than most people have in years! God Bless! Becki, Angelos & Tyler

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  7. Tears!!! Po' baby. Thank God, we know how strong he is.

    Nickie Garrett

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  8. Kyle, Steven and I keep you and your Mommy and Daddy in constant prayer and we shall continue. Phillipians 46:10 says "be still and know that I am God". We claim the victory!

    Steven and LaJean Grossett

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  9. We all will continue to pray for you Kyle. Tell mommy and daddy to continue to pray and let God do his work...

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  10. Quantis and Andrea
    It is Hannah from the NICU in Hinsdale, we pray for your family everyday. Please know that Kyle and your family are never far from our thoughts.
    Sending big hugs
    Eric Rachael Ryan Jillian and Hannah

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  11. Dear Quantis and Andrea,
    Although we've never met, you and little Kyle have been in our family's prayers for a long time now. We wanted you to know that our hearts were touched by Kyle's courageous spirit and determination. How true the statement that so many can be affected by "one solitary life." Know that your little angel will always be with you and that his love and that of those who care so much will give you strength and comfort for the remainder of your journey "until you meet again." Our prayers for you remain constant ... Sincerely, Lynne and Joe Bandyk (Bri's mom and dad)

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