Today was day 5 after my trach surgery, so the ENT came today to do my first trach tube change. The incision is healing well and everything is going according to plan. The tube generally gets changed once a week. The trach hole is kinda like an earring hole, so it takes a few days for it to heal. While the hole is fresh, it is important that the tube not be taken out so they have had me back in that "coma like" state that my Mom hates. Tomorrow morning, they will discontinue the paralysis medicine and begin weaning the sedation medicine, so I can wake up and check out my new self. After about 2 weeks, it should be almost completely healed. No matter what, I heard my Mom tell the nurse that I am wearing my Halloween costume Saturday no matter what. Bet you guys can't wait to see what I am going to be...lol. I will be sure to post pictures.

Right now, we are kind of in a holding pattern until I am fully awake and then we will start to evaluate things. Next steps will be to try to wean my ventilator settings down to either get me off altogether or to move me onto the ventilator that can be used at home. We also will start to work on my bottle feedings again and figure out if I still need this g-tube. However long that takes will determine how long I have to be here. Everyone keeps saying I am the boss of my destiny but that seems like a lot of pressure on a little guy like me. I'll be sure to do my best. I know my Mom was hoping by Thanksgiving, but who knows. You'll know as soon as I know.