Still Going...........

The last week has been pretty good for me as I continue to move in the right direction. I have been able to slowly wean on the ventilator and made a big move today to what they call the "weaning mode" on the ventilator. I won't go into the boring details of what that means because my Mom says people don't like when you act like a know it all. So far, so good with the change today. I took a few more tests last week to help confirm this colic thing and passed with flying colors. The EEG shows no signs of seizure activity and the GI contrast study shows no blockages or abnormalities in my intestine, excessive acid reflux or hernia by my diaphragm. So it's looking more and more like colic, but let me tell you, it's kicking my little butt. I started my physical therapy again and have been getting out of my bed to hang out in my new bouncy seat. I saw a new pulmonologist and she says that she thinks that I would not need to get a trach to deal with my lungs problems, only if they there is some type of airway problem. She believes that we should be able to get back to where I was before with my breathing, but that I just need time to recover. She recommended some changes to some of my medicines and treatments and my doctors have been following her plan. I'm still eating well and now weigh 10lbs 8oz. So that's about it for now. More updates to come as they happen.