Got Milk?

Great news! I was given my first bottle yesterday and I did pretty good. I was able to take 2/3 of an ounce before getting tired. I know it doesn't seem like a lot, but it is for me. They are now going to start trying one bottle a day. My Mom also started trying to breastfeed and I latched on pretty good for my first try. Things have been going pretty good. For the 3rd week in a row, there was no change in my eye test, so that means that it is not getting progressively worse. I also passed some liver screening test that I had to take. I am continuing with all of my therapy and have been gaining weight pretty good. I am up to 4lbs 4oz today. I'm really starting to fill out my clothes.

Speaking of clothes, the funniest thing happened on Sunday. I know most of you probably know how much my Mom despises the color yellow - long story short (childhood trauma, yellow coat, big kid = Big Bird, 'nuf said). Anyway, I had a nurse that was not so familiar with me and she didn't know I had my own clothes, so she put this yellow onesie on me - ha, ha, ha. I thought my Mom was having a flashback of being called Big Bird by those mean kids, because she looked shocked. Needless to say, the nurses now know Mommy doesn't like yellow. Well, that's about it for now. I have about another week before the steroids are scheduled to be done, so we'll see then.