
Over the last week, I have been really riding the NICU roller coaster. I was able to wean off the CPAP and went to the high flow oxygen last Thursday. My Mom said this was the best day ever because she could see how happy I was. I was so alert and finally stable enough that my Dad was comfortable holding me for the first time. I stayed on that for 2 days but my rebound put me back on the CPAP on Saturday. I did pretty good with that until today. Instead of giving up on me, my doctor decided to try the high flow oxygen but with a stronger flow. So far this is working and we are praying that it is good enough to keep me off the ventilator. For some reason, my little lungs are just not ready to work full time (kinda like my Mom). We are going to try to hold out as long as possible, but I may have to get some more steroids. We are hesitant to do the steroids because long term use of them can sometimes have some not so great side effects. I am 8 weeks old today and just over 32 week gestational age. I have continued to grow and am now 3lbs 7oz. I am up to drinking 1 ounce of milk every 3 hours. I took an eye test last Friday and overall had good results. I scored a level 1 on a scale from 0 to 4, with 4 being the worst. The opthamologist will continue to monitor me to make sure my eyesight is ok. Prolonged use of oxygen can sometime lead to abnormal growth of blood vessels in the eyes of preemies. This was pretty good news. They are watching me now to make sure I don't have an infection because my white blood cell count was a little high. Overall, not too bad - definitely could be worse. Please continue to keep me in your prayers and hopefully I will be breathing room air soon.
Keep up the good work, Kyle! We are so proud of you!!
ReplyDeleteKeep on fighting Sir Kyle!!! You are definitely a strong little angel!!! Andrea stay strong!!
ReplyDeleteThe Dhuse's
Good job Kyle!! Keep it up! You're daddy looks really happy holding you :)
ReplyDeleteXO- Sohni